I was hoping that somehow when I went to bed all the bad would go away- that I would have been dreaming this whole time rather than it being my new reality.
Yesterday we got some very, very bad news about William. In the lottery of things that Preemies are at risk for, this is among the top of the list of things I never wanted to hear in the same sentence as his name.
William has periventricular leucomalacia, or PVL. It is a rare brain injury that usually leads to cerebral palsy. I can't believe I had to write that. I am so absolutely terrified for my boy, for my family.
We have yet to speak to a specialist about this and hope that what William has is the milder form of damage. But I am frightened by the way the neonatologist spoke about it yesterday... that it is the most devastating type.
Please pray for my son. Please pray for my family.
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3 comments:
I am so sorry! I will be praying for little William and your whole family!
Lisa,
You and William are in my prayers. I can only imagine how terrified you must be right now because that same ice cold fear struck my heart when they told us they thought Eli had PVL prior to his latest MRI. William is a fighter and has the best possible family he could be born in to. I pray the neuro had good news for you all yesterday (and that you were able to speak with them before the holiday). If there is anything I can do, please let me know....even if it is just to talk.
Lisa, I hope you were able to speak to the neuro but please remember, it is their job to tell you the absolute worst possible scenerio. Our babies can do amazing things and become amazing people no matter what their challenges are; as long as they have our love and our faith! Nothing the doctors tell you will change how much you love that little monkey. He is beautiful, strong, and perfect- just like his big sister and his parents! You are in my thoughts...
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