I swear, I'm just going to stop taking William to the doctor. It always seems like it is one kick in the gut after another.
I have known for a while that William's vision is not normal. But with all his swiping at toys and tracking things, I had started to get very hopeful that he had a lot of functional vision. Yesterday was William's second Ophtho appointment. It was very dissappointing. When the doctor's first question after her exam is, "Have you applied for SSI?", you just know what's coming next is no good.
His right optic disc now is appearing paler than it had before indicating optic nerve atrophy rather than hypoplasia. She didn't think it would get any worse but couldn't guarantee me that. She said that she approximates 20/400 vision with his better eye (the left) and quite a bit worse with his right. The doctor did not think that glasses would help much, if at all. Add initial signs of Cortical Vision Impairment and his visual prognosis is not promising.
So, he is officially considered legally blind now. I hate this.
Later today, I am going to post some good news!
Showing posts with label onh. Show all posts
Showing posts with label onh. Show all posts
Tuesday, May 15, 2007
Monday, February 12, 2007
Some good news, finally!
A picture says a thousand words...
Tummy time: check out that head control!
William is cross eyed here because he is trying to focus on a rattle we are shaking!
Yeah, I cried.
Tummy time: check out that head control!
William is cross eyed here because he is trying to focus on a rattle we are shaking!
Yeah, I cried.
Thursday, January 11, 2007
Alphabet Soup
We have yet another diagnosis.
A couple of days ago William was diagnosed with Optic Nerve Hypoplasia. He will likely have vision impairment that could be as severe as blindness. It is impossible to tell how he will be affected by ONH... it is another wait and see game. Unfortunately, this type of vision impairment is not such that glasses would be of use.
What scares me is that this could be an indication of how severe William's PVL is. I also worry about the development challenges of not only dealing with cerebral palsy but also being vision impaired. I want William to be as independent as possible but now I am so worried that these two diagnosis will make independence very hard for him... Ugh.
I'm drowning in Alphabet Soup.
A couple of days ago William was diagnosed with Optic Nerve Hypoplasia. He will likely have vision impairment that could be as severe as blindness. It is impossible to tell how he will be affected by ONH... it is another wait and see game. Unfortunately, this type of vision impairment is not such that glasses would be of use.
What scares me is that this could be an indication of how severe William's PVL is. I also worry about the development challenges of not only dealing with cerebral palsy but also being vision impaired. I want William to be as independent as possible but now I am so worried that these two diagnosis will make independence very hard for him... Ugh.
I'm drowning in Alphabet Soup.
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